I've Got Lyme

I Don't Want to Talk About it

Posted by Nikki DiSalvo on

I really don't want to talk about it. And that's how I know I should. Sometimes when things haven't been going well with my health for a long stretch of time and I don't have any answers or solutions, I start to detach from myself and from others where my health is concerned. I get so discouraged that I stop seeing any point in talking about whatever's going on. Which for the past several months has been a bunch of gastrointestinal issues that I can't seem to find a solution for. And of course, whenever my body is experiencing problems like...

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The Adventures of Couch Guy and Crackity Bones Girl

Posted by Nikki DiSalvo on

Oof! What a month it's been! Derek has been sick with a mystery illness for almost a whole month now. It has kept him basically bed/couch bound and has given him a huge array of symptoms, all beginning with an extended migraine. After a plethora of doctor's visits, a hospital visit, and a ton of testing, we finally found out that he has Mono. Apparently it's worse when you're an adult, and it certainly seems that way judging by how completely wiped out he's been. It was getting pretty scary for a while when we didn't know what was keeping...

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Burning Down the House

Posted by Nikki DiSalvo on

I just got out of the shower and I want to scratch all my skin off. This is nothing very new but it's not something I've gotten used to. For the past few months, I've been questing for answers about this periodic itchiness along with episodes where I turn lobster-red and feel like I literally become the sun. In my last post, I talked about the first time the lobster incident happened. I went to the ER thinking I was having a weird allergic reaction to a new body wash. Turns out it was something more than that, although I'm...

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When Things Get Weird

Posted by Nikki DiSalvo on

How do you explain to someone what it's like when your body doesn't feel like your own? When you can look at yourself and see that it's you, but it seems that all your internal workings have been switched up. Like your insides have been scooped out and replaced with a random set of organs, tissues, and cells. Every day I feel like my spirit, my essence, is living in a different body. Sometimes it's a body I've been in before and the constellation of sensations are familiar. Maybe it's the body that twitches relentlessly and cramps up with the...

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Where Am I???

Posted by Nikki DiSalvo on

We'll see how this goes. Last night was scary and I'm not feeling totally recovered but I want to get it written down before I forget the details. Shortly after Derek and I got home from dinner with friends, I sat down on the couch to get some work done for school. A few minutes after opening my laptop I noticed I had a weird feeling in my head and neck. If I had to point to where it was I wouldn't be able to; it felt like it was going straight through the center of my head, from the...

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