I've Got Lyme

A Real Day in the Life of a Lymie (Uncensored)

Posted by Nikki DiSalvo on

  If you've read more than one of my blog posts, or if you know me personally, it's probably pretty clear to you that I don't like to complain. I don't like to throw negativity on already difficult circumstances. So sometimes I take that censoring a little too far and I think it has the unfortunate effect of smoothing out some of the humanity of the situation. There's a part of me that wants to show the really raw and painful parts of Lyme Disease, but there's another part, that usually wins out, that likes to offer people rose-colored glasses...

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Deciding to Head in an Herbal Direction

Posted by Nikki DiSalvo on

'Ello! Let me just preface this by saying that my brain is not on point today. Major concentration issues. As my dear friend would say, I'm on the struggle bus. But I said I was going to get this post out, and so it's going to get done, damn it! So if it's a bit rough around the edges, please pardon my fuzziness. Also, I had a really fun day playing disc golf with my husband and our friends at Water Works in KC on Sunday, but my body is punishing me for it with some pretty intense cramping/twitching and overall achiness....

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Done With IV Antibiotics and the Launch of Lyme Warrior DG!

Posted by Nikki DiSalvo on

Friday was my last day of IV antibiotics!!! For now anyways. I'm going to leave my port in for probably at least 6 months or so just in case I need to go back on IV meds. That just means I have to have it flushed once a month; not a big deal at all compared to being at the hospital for 2 hours every day!! I've had a few Lyme attacks in the past month and haven't been feeling very great overall, but I'm still convinced that my body needs a break from IV antibiotics. I think the weather...

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Catching Up; AKA Life is Bananas

Posted by Derek Savory on

Well then! Many moons have passed and much has gone on since my last post. I've had several surgeries, went to Kansas for a week, decided to move here for grad school, and am just about to finish my first semester as a grad student in Clinical Counseling at Emporia State University. Through it all I've been trying to find a treatment that will bring me back to an acceptable level of functionality. I'm starting to come to terms with the fact that I may never be exactly the same as I was before Lyme, but I refuse to accept...

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Getting My Feet Back Under Me

Posted by Nikki DiSalvo on

Well hello. It's been a while. My plan was to post once a week, but I'm starting to learn that my life right now is not conducive to being set up around any definite plans. From one day to the next, one minute to the next even, I can go from feeling great to not being able to sit up on the couch without a supreme amount of effort. Trying to gather my thoughts and motor skills enough to type out a blog post often feels like an insurmountable task these days. But here I am, I'm doing it! It's...

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