I've Got Lyme

The List; 50 Days of Lyme

Posted by Nikki DiSalvo on

Since the day before Thanksgiving when I got my PICC line for IV Rocephin (aka ceftriaxone) I've been trying really hard to keep track of my symptoms on a daily basis. I had the line for 28 days and gave myself the antibiotics at home. I took almost 2 weeks "off" after the IV treatment before I began taking Banderol and Samento drops at home. I can't afford a Lyme literate doctor right now, so after a ton of research I felt like the herbal route is the best way to keep treating the Lyme while waiting to find a...

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My Complicated Relationship with Movement Part 1

Posted by Nikki DiSalvo on

I know it can be really hard to stay physically active when you have Lyme Disease. It's so difficult to judge how far to push yourself. When to rest and when to move your body. How much pain and nausea outweigh the benefits of being active. I'm struggling with that a lot these days. Before I was diagnosed I practiced yoga in some form almost every day and went to classes about twice a week on average. Sometimes I felt fantastic after class but other times I was knocked out by it in a very bad way. I would have...

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A Small Slice of Life Before Diagnosis

Posted by Nikki DiSalvo on

I've known for a long time that something wasn't right with my body. Even when doctors were finding no physical evidence of any kind of abnormality, I didn't feel like the person I was supposed to be, the person others thought I was; a healthy, active woman in her mid-twenties, successfully navigating a full-time college schedule while working a minimum of 40 hours a week as a nanny. So the dissonance between the way I felt and the way I was perceived by doctors and others generally resulted in me feeling like I must be completely crazy.    I was...

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Here's What I Remember (And What I Don't)

Posted by Nikki DiSalvo on

I don't remember ever finding a tick on myself or having the notorious erythema migrans rash--the "bull's eye" rash that most people associate with Lyme Disease, including many doctors. It's actually not surprising that I never found that supposed hallmark though, because an estimated 40-70% of people with Lyme don't recall ever having a rash! There are a multitude of reasons why the range is so large, including generally skewed data in individual studies (such as the CDC often citing data from surveillance cases, which use a rash as one of the criteria for surveillance, so obviously the people they are...

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So, I've Got Lyme Disease

Posted by Nikki DiSalvo on

I still have to say it to myself every now and then to keep it real in my mind; I've got Lyme Disease. I don't have a panic disorder. Or lupus. Or MS. Or any of the other multitude of diagnoses that are often wrongly assigned to people with Lyme. And I'm not just batshit crazy either, which I was truly beginning to believe before I was properly diagnosed. It's only been about two months since I found out what was going on, but I've never learned so much about one subject in such a short amount of time. I was...

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